Thinking about Symlin…

One of the things discussed at my appointment last Friday was Symlin.

We both noticed that I definitely have some big spikes (today would have been a fabulous example – how can you bolus, eat yogurt and end up at 215 an hour later???) (was down awhile later…).  She spotted my pancakes on the printout within seconds. I’ve had pancakes 3 times in the last six years. They’re yummy. I love eating them but the rest of the day pretty much sucks, so I don’t have pancakes.

So we talked about Symlin. Not to take on a regular basis, just at those times when wanted/needed.

I spent my weekend reading – several DOC’ers have written about it and all of it is interesting. It makes sense, along with being slightly frightening. It is another HUGE learning curve for me.

It – Symlin – is in a pen now so no syringes/vials, which is good because, I’ve never, ever used a syringe.

It is expensive. Luckily, it’s covered by my insurance, at the highest co-pay, but covered.

I don’t “low-carb” intentionally but, other than dinner, anything else is not “high-carb.”

Any advice, hints, whatever will be very appreciated.

Our local drugstore had to order the Symlin. It got there today and I will pick it up tomorrow.

I really, really would like to hear from anyone who is using it or has used it. Please??

3 thoughts on “Thinking about Symlin…

  1. Hi Colleen!
    I’ve not used Symlin for a while now. I really loved it, loved how I felt full and satisfied with what I had eaten, loved my post-meal blood sugars, just loved it in general. But I had a couple of lows that scared the crap out of me, which is why I stopped using it consistently. Once I stopped using it consistently, it was all too easy to just keep not using it – I fell out of the habit, know what I mean?
    When I used Symlin, I had to be sure to spread out my meal bolus. I used a square wave (MedT language) or an extended/combo bolus to deliver the same amount of insulin as normal, but spread out over 90 minutes. It’s all a matter of trying to time that insulin so it is hitting your system at about the same speed as your food is digesting.
    The lows are scary because Symlin is slowing your digestion. How do you treat a low when your digestion is slowed down? It’s terrifying.
    I think it’s a really great tool to have in your box, but like most powerful tools, it can be scary sometimes. Start slow, start carefully. Be Ok with some highs as you learn how it works for you, then, as you learn more you can start being a little more aggressive.
    Also, as far as using it just here and there, I had to take it for a while to get over the nausea feeling it can sometimes produce. When I was feeling yucky, it would usually go away after I got a bite or two of food in me. Also, Also, I think I remember seeing blood sugar improvement even on the lower doses, so maybe you’ll see good benefits without having to deal with much of the nausea and stuff. Good luck! Let us know as questions come up!

  2. I used Symlin for a while and I agree with Scott about the scary lows and the other stuff.
    I had an issue with nausea. It never got better for me so I just had to stop using it.
    My numbers were awesome and I felt full often but I also felt sick, a lot, and that was not fun.

  3. I tried Symlin for a little while. It was too complicated for me. Here’s what I had to do to avoid nasty lows –

    I would take the Symlin when I ate but no insulin. If I took any insulin I would go too low. THEN, an hour and a half later I would take insulin to cover the exact amount of carbs I had eaten 90 minutes before.

    I just wasn’t worth it to me to remember all those steps. I would forget the insulin part often and then spike. So if I am taking the Symlin to avoid spiking and then spiking anyway, there was no point.

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