D Blog Week – Monday


Click for the Change the World – Monday 5/12 Link List.
Let’s kick off Diabetes Blog Week by talking about the diabetes causes and issues that really get us fired up. Are you passionate about 504 plans and school safety? Do diabetes misconceptions irk you? Do you fight for CGM coverage for Medicare patients, SDP funding, or test strip accuracy? Do you work hard at creating diabetes connections and bringing support? Whether or not you “formally” advocate for any cause, share the issues that are important to you. (Thanks go out to Kim of Texting my Pancreas for inspiring this topic.)

So – I’m not going to change the world but I will soon be one of those d-people writing letters to promote CGM coverage for Medicare because, guess what? It’s almost that time of life for me. (Really? When did that happen? Is that why they no longer “card” me at the liquor store?)

When I was diagnosed and when that diagnosis indicated Type 1 LADA, I knew I wanted a pump. At that time, insurance said that you had to be on MDI for at least two years before you could even hope to get a pump.

Well – with thanks to those d-people who wrote and advocated and blogged and begged, I got the pump without a two year wait.

Same with the CGM, Kerri and others had to fight to get a CGM. Now, because of her and all of the others who worked hard for all of us, I have a CGM. And it’s probably saved us a couple of ER trips, easily.

Driving? I have pulled off I93, tested, and did the “drink the juice” before continuing.

Sleeping? 49 on Dexcom means juice and maybe a peanut butter cracker at 2am.

Working? Gardening? Cooking? All of them!

So now – I’m approaching Medicare and know that CGMs are not provided. I’ve known it for awhile. It sucks.

When I spoke with my PCP about this Medicare D-issue, along with others – like enough test strips, she quietly said, “Well, it costs them less, if you die.”

Mike H wrote about it over at DiabetesMine.

And Sue wrote about it at Test, Guess & Go.

Advocate? Sure, count me in!

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10 Responses to D Blog Week – Monday

  1. Rachel says:

    Yeah, lead the fight!

  2. Laddie says:

    I’m glad to hear that you are joining Sue’s crusade for Medicare coverage for CGMS. It is such an important issue for people already on Medicare and people like us who will be there soon. I’ve bookmarked your blog and look forward to getting to know you better. -Laddie from Test Guess and Go

  3. Kelly Booth says:

    I know it is NOT funny, but I had to laugh when you said your doctor said it costs them less if you die, because that is exactly how I feel sometimes. I was nervous when I appealed Medicare for mine because I lived alone and by the time I would wake up and realize I needed help, I didn’t need it anymore. I still put in my letter that if someone had been around to call 911, they would have paid $400 x number of times for the ambulance trip alone not counting all the hospital fees!

  4. Kim says:

    Count me in, too!

  5. Karen says:

    I hope you know how much I admire you, and I hope you know I will be right by your side for this (and any) fight!!

  6. So needed, in any age group. (and a very good thing to lobby for) It’s just not right that they won’t cover it.

  7. Katy says:

    Thank you for making this happen now. So many people will benefit from your care.

    Have you ever been to a BJ’s? I think they have to card everyone for some bureaucratic reason, but one can almost convince oneself one is passing for questionably 21.

  8. Erin says:

    Amazing Cause! Good Luck

  9. Sara says:

    Yes, yes, yes!

    I didn’t really have a problem getting my pump (one year after dx), but a few years later when I tried to get a CGM I was told “no one in the state of Florida had ever been approved.” I appealed but there was no compelling reason for them to approve me – no ER visits, no seizures, etc. I hadn’t cost them anything yet.

    Thanks to the CGM fight organized by Kerri, Gina, and others we got the insurance companies to pay attention and it is more routinely covered. I truly have hope that we can make a difference in this Medicare battle too!

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