Old blog, new insulin pump…

If it wasn’t for D-Blog week (Karen, is it happening this year?), this blog would be blank. Really – it’s been a year? Sigh…

But…

There’s a new pump! The t:slim X2. (I had to investigate the correct way to write it…)

There’s new insurance! Egads, I’m on Medicare.

I had my first C-Peptide test. I passed (or maybe we fail…??)! I still have Type 1 Diabetes. What a surprise!

And, I officially retired on 12/31. You would think with all that extra time that I’d be on this computer just blogging away. Didn’t happen.

Until today, this switch from Animas to Tandem hasn’t been a really smooth transition.

Tandem is/was delightful but the young man handling my account/order had a tough time figuring out just which company I was going to order the pump and supplies through. By the third company, my endo’s office was calling and asking just what the heck was going on – as they were being contacted by each (3 of them) medical supply company during a two week period.

Then – the C-Peptide and fasting glucose was needed by the medical supply company for the approval. Again, the endo was annoyed (I love my endo) (thinks the test is a waste of time and money for me/my insurance) but did the order.

Then – I let the Tandem person know that I hadn’t ever seen or touched a t:slim so she said she’d have someone contact me – didn’t happen.

And Friday night I was called to say it was approved and yesterday I got a FedEx notice saying it’s being delivered on Thursday.

So… I shot off an unhappy email early this am and now – everything is fixed and sounds like it’s going to be a good experience. The trainer sounds delightful so I think this is going to be fun. Well – it’s still diabetes but we can have fun, right? Maybe I’ll bake some cupcakes for our training session.

Meanwhile – did some changes to this page and holy gee I have to figure out some stuff. I’ll get there. Stay tuned for more of me & medicare & tandem & dexcom.

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Day 3 – 2017 D-Blog Week

Click here for The Blame Game – Wednesday 5/17 Link List
Having diabetes often makes a visit to the doctor a dreaded experience, as there is invariably bad news of one kind or another.  And sometimes the way the doctor talks to you can leave you feeling like you’re at fault.  Or maybe you have a fantastic healthcare team, but have experienced blame and judgement from someone else in your life – friend, loved one, complete stranger.  Think about a particularly bad instance, how that person talked to you, the words they used and the conversation you had.  Now, the game part.  Let’s turn this around.  If you could turn that person into a puppet, what would you have them say that would leave you feeling empowered and good about yourself?   Let’s help teach people how to support us, rather than blame us!  (Thank you, Brian, for inspiring this topic.)

I’m reprinting an old post –
(and FYI – The Blame Game has me singing The Name Game all morning – ack!)
(and just the thought of turning that person into a puppet makes me chuckle…)
(Oh, and I have a new, very kind and understanding and caring, boss.)

Dexcom Beeps!

I don’t want to write about this.

I can’t believe I’m writing about this.

Last week – there was a lunch – at work.

I’m the one who orders and picks up the monthly lunches. It’s fun and yummy! And every now and then, it’s a birthday lunch.

It was a Birthday Lunch.  (There was Boston Cream Pie.)

Dexcom went nuts.

And one person made comments about Dexcom’s beepings.

The beeps got annoying and I switched it to vibrate.

The vibrates got annoying and the person said, “What is that?”

I explained that my blood sugar was high and the person said, “Well, yes – YOU ATE CAKE!”

And – I lost it.

I stayed fairly calm. I like my job and even more, I like my health insurance.  And this person – is my boss. Well, sh*t.

BUT – the person needed to know – he was wrong. So I did the old “search thing” for Diabetes Etiquette – and found it/them.

And – I printed the following and put it in this person’s mailbox.

(https://www.diabeteshealth.com/etiquette-for-people-without-diabetes/)

Thank you Dr. Polonsky!

1 – DON’T offer unsolicited advice about my eating or other aspects of diabetes. You may mean well, but giving advice about someone’s personal habits, especially when it is not requested, isn’t very nice. Besides, many of the popularly held beliefs about diabetes (“you should just stop eating sugar”) are out of date or just plain wrong.

2 – DO realize and appreciate that diabetes is hard work. Diabetes management is a full-time job that I didn’t apply for, didn’t want, and can’t quit. It involves thinking about what, when, and how much I eat, while also factoring in exercise, medication, stress, blood sugar monitoring, and so much more – each and every day.

And this morning – in my mailbox.

“I sincerely apologize.”

You know, having Diabetes sucks. Having DOC friends is awesome. Having the GUTS to stick up for myself? Couldn’t have done it without ya!

Thanks DOC!

Day 1 – 2017 D-Blog Week

Really? The 8th Year?! How amazing!

Today’s post suggestion: There are two. I chose “good things diabetes has brought into my life.”

  1. All the d people who have become friends through blogging and facebooking
  2. The people I’ve met here in my town because I don’t keep my Diabetes a secret. Two great examples…
    The elderly woman who showed up in my church office holding her meter and lancet who said, “They told me you would help me.” “They” are some women in the church who know I have D and so when the woman was first diagnosed with Type 2 and at a loss as to how to test, they sent her to me.
    The second is a family whose young daughter with Type 1 who uses a pump. They were hesitant to send her to a summer program at the church until another parent said, “Oh, the parish secretary wears a pump! She’ll be there!”
  3. I know how to count carbs. Heck, I know what carbs are.
  4. I am soooooooooooooooo good at shutting up people who ask, “Can you eat that?” I used to teach. I can still teach. And I do!
  5. The D-Parents. You are all amazing!

Life goes on. We all hope and pray for this dreadful disease to be cured. I’m grateful that I found friends who have helped me for the past 12 years.

And that’s a good thing.

Finding the d-bloggers

Way back when… Not really but… When following blogs on a daily basis…

I saved each blog – and there were LOTS of ’em – as a favorite in/on? my browser. And each morning I would click on EACH one to see if that blogger had posted something new in the last day or so.

It was tedious.

Then, it was Amy over at Diabetes Mine who wrote about Google Reader (don’t look for it, it’s gone) and wowee, zowee, it was a miracle. I set up my Reader page and it would do the hard work and let me know when there was a new post on one of my favorite blogs!

And life was much simpler. And I got to read a bunch of d-blogs. And made new friends!

Yay!

Then it (Google Reader) was gone.

I’m not sure how I found Feedly – but I did a couple of years ago. Haven’t used it in awhile but decided it was time to get back to reading and writing blogs. I’ve set it up – again.

Using Karen’s list of participating bloggers for the 8th Annual D-Blog Week!, I’m finding some old friends and some new friends. Have added those to my new Feedly list and am hoping I can keep up with the reading of the blogs.

Especially during D-Blog Week!

2016 Blog Week – Monday

2016-BlogWeekWow, it’s still here! My blog – the one I used to be so faithful about writing posts!

Thanks to Karen and the 7th Annual Diabetes Blog Week, I’m back here trying to blog, again.

Well – – –

Today’s topic: Why Am I Here?
Let’s kick off the week by talking about why we are here, in the diabetes blog space. What is the most important diabetes awareness message to you? Why is that message important for you, and what are you trying to accomplish by sharing it on your blog?

That’s too funny!
Simple answer – because Karen encouraged all of us to participate in this 7th Annual Blog Week. Just like she’s done for the past six years. She’s very encouraging!
Short answer – because I probably would be a very confused and angry and sick and lonely person with diabetes if I hadn’t found the d-blogs, and the d-bloggers, and the gazillion people who make up the DOC, Diabetes Online Community.

The most important message for me. I am not alone.

Which also means – You are not alone.

I need to share my not alone thoughts more often, so that some other d-newby, especially those of us with LADA who are being diagnosed when we are long past the juvenile ages, will find me and know that they’re not the only one.

A whole week of blogging? This will be good for me. This will get me back in the swing of blogging on a regular basis.

Um – let’s hope I do better at this than the treadmill.

Learning from the D-Blogs

I have always enjoyed learning something new. I’d prefer that my new knowledge NOT be related to Diabetes but – you take what you can get.

I keep juice boxes in my car most of the year. And I have to be honest, sucking down a box of hot juice in August is not fun. But, even less fun is trying to suck down a partially frozen box of juice in February. Only happened once because – I enjoy learning.

But – I didn’t know that glucose tablets don’t freeze. And I doubt that heat kills them so – My jumbo jar of Wal-Mart glucose tablets will now stay in the car – hot and or cold.

Where did I learn this? That Canadian D-gal – Scully and her Hacks!

Inserting Dexcom by myself in my arm? There are several d-people who have recorded a bunch of “how to’s.”

The one that helped me was Kim’s – a couple of years ago. I was quite annoying with my Yay! I did its! on Facebook that day. I still ask my husband for help most of the time – cuz it’s easier. But at least I know that I can do it, if I have to do it.

And – I don’t use OmniPod but – the first time I watched Caleb do his – by himself (with a little help/advice) – I was just as thrilled as if I’d been his mom. He was so proud and it gave me the courage to keep on working on this d-stuff, even when it’s not easy. He’s older now – and even cuter!

So – d-bloggers need to keep on teaching. You never know who you’re giving some much needed courage to keep on keeping on.

 

Hello, It’s Me…

The song was popular in the early 70’s – 1972, to be exact.

Here’s the song – https://youtu.be/lLeCB7Kn-VE
I put it at the bottom of this post.

Here are the lyrics (for you younger d-people who think the 70’s are the old days – please remember that the Beatles and the Rolling Stones were the 60’s) – (And some of us were around for those…)
https://play.google.com/music/preview/Tkmzw3nu2aqyfawffhhnsgbby5i?

I very often think of the d-bloggers that I got to know when I was first diagnosed. OMG – I have Diabetes? Me? I was scared. I was angry. I was petrified. And there they all were – right there on my computer screen. It was very nice.

I have this terrible habit of speaking before I think. Commenting on blogs? Well, I’ve grown wiser with age and kept my mouth shut for a long time. I was a “lurker.” There was even a day for “unlurking.”  I really enjoy having all of these d-friends and know that I’m lucky to have found the DOC – Diabetes Online Community.

Back in the beginning, I spent a whole lot of time Googling terms I would read on the d-blogs.

What’s a basal? (Hint – not the plant you grow in your veggie garden.)

What’s a bolus? (Another hint – frequently seen as “I bloused 2 units for the cupcake,” because spell checks just don’t get bolusing – )

What’s MDI? (Multiple Daily Injections) It’s not an advanced degree – but it probably should be!

And now? Well – I’m pumping with an Animas Ping. I’m CGM’g (Continuous Glucose Monitor) with a Dexcom. And I’m writing letters to Senators and Representatives for their help in making CGMs available through Medicare. And – my preference is approval for Types 1 & 2.

So – since I’ve dusted this ole blog off (Thanks, Reyna!), I hope to find some new friends in addition to boring my old friends.

Oh – one more thing! I can spell Endocrinologist! Yay, me!

AND – we haven’t had to shovel any snow yet!