Three in One Day

Remember the story of the tailor who made himself a belt saying “Nine in One Blow” just because he swatted nine flies?

Well – the other day I thought of him/the story as I inserted my third inset in five minutes.

I do smile when I think about my first year, few months of inserting the insets.

Now – not a big deal,  usually. Back at the beginning? I was petrified!

First one popped in and I knew it was an owie – a real owie, owie.

So I took it out. Slapped on a band aid. Popped in another one.

Oh good – no owies – Wrong! As I walked to the kitchen it hurt, hurt, hurt.

Just touching it hurt.

So I took it out. And the hole proceeded to bleed and bleed and bleed.

The third one was “the” charm

I still have a really ugly bruise from the first one.

And – this blogging thing has taken me places I never thought I’d go.

So here’s a photo of two band aids and an inset.

2014-07-04 019 (800x600) (640x480) (300x225)

And finally… I love reading everyone’s posts, seeing lots of the photos from FFL. It all looked like wonderful fun with wonderful friends. I love knowing all of you. I hate that we had to meet. But, aren’t we lucky?

 

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Nope, It’s Not a Secret!

First – May 18th was the last time I posted?? I guess I’m more boring than I thought!

Today’s post – about a secret? I’ve never kept my diagnosis a secret. Now, you need to remember that I was just about 55 years old when I was diagnosed with LADA – (The other Type 1). At 55, I really didn’t care who knew that I had Diabetes. It didn’t even bother me when most assumed it was Type 2. Their comments were bothersome, and if it had been T2, I might have felt like slugging a few people but  –  I tried to gently explain that I was an older person who was dx’d with “Juvenile Diabetes.” Amusingly enough, most people understood that. And yes, I know we don’t use that term but – people who are not part of the whole D-World don’t know that.

This week – at my office – which is at a church, a woman from a nearby town phoned wanting to enroll her 2nd grade daughter in a week long summer program (VBS, for those in the know…) here at our church. She told our director that her daughter has Type 1 Diabetes and that she’d been told by someone in our parish that her daughter would be more than welcome as the parish secretary has Type 1 and she has a pump. I am so pleased that the young mom from our parish a) knew about my d and b) assumed that I’d make this mom feel safe about leaving her daughter. I’m looking forward to meeting her and her mom!

So – yup – my Diabetes is not a secret.

And boring? Not really. Just enjoying the (finally!!) summer weather and flowers and sunshine and visitors and life…

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D-Blog Week – It’s Sunday, Finally!

Yay! It’s Sunday! I need the next week or so to read everything I didn’t read this week.
Cuz – I have a job – and that job pays my health insurance – and keeps me sane (well, kind of…).

Click for the My Favorite Things – Sunday 5/18 Link List.
As we wrap up another Diabetes Blog Week, let’s share a few of our favorite things from the week. This can be anything from a #DBlogWeek post you loved, a fantastic new-to-you blog you found, a picture someone included in a post that spoke to you, or comment left on your blog that made you smile. Anything you liked is worth sharing!
 

Favorites? Reading some of the newer blogs. I still remember who commented on my blog when I first began blogging. And it made a difference, a big difference. HortonHearsAWhoBookCoverI sometimes feel like Horton Hears a Who – well, I guess I feel like one of the Whos. You remember , “We are Here! We are Here!”

I’m not a PR person. I used to teach Special Education.

I’m also a mom. They grew up, they’re older than some of you… (OMG). Ummm, one of our sons graduated from HS with Kim V. How strange is that? Not that he graduated with her, but that I figured it out. And he has/had red hair, too. And they didn’t know each other…

I work at a church. In addition to other stuff, I write/edit the Sunday Bulletin – which is often called the “best kept secret in the Catholic Church.”

I want the teens to keep blogging. They’re our forgotten? upcoming? very inspiring? d-people and it’s so really, really important that we listen to them. I want them to have hope and a positive attitude toward this really, crummy disease. Please find a teen blogger and comment on their blog!  I did…

I want the Moms & Dads to keep blogging. I honestly cannot imagine dealing with a child with diabetes. You don’t make it look easy. But you do write about it and so, other parents discover you and know that “they can do this.” You were my first teachers when I started pumping.

I want us “Elder Bloggers” to keep on blogging. We need Medicare to support our needs, and not be happy if we just die. We need you younger bloggers to support this because, one day, it will be important to you.

I want the d-bloggers with passion and energy and knowledge to keep on blogging. You are so very inspiring!

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D-Blog Week – Saturday (some photos…)

dblogweek2014
Click for the Saturday Snapshots – Saturday 5/17 Link List.
Back for another year, let’s show everyone what life with diabetes looks like!  With a nod to the Diabetes 365 project, let’s grab our cameras again and share some more d-related pictures.  Post as many or as few as you’d like.  Feel free to blog your thoughts on or explanations of your pictures, or leave out the written words and let the pictures speak for themselves.
 

My friend – with her new pump (she did injections for over 50 years) –
hoping to get a CGM as she lives alone but –
knowing she’s going to have to fight for it as she’s on Medicare.  2014-04-23 001 (480x640)

Dinner at a New Jersey diner – no, I didn’t have dessert but…2014-04-24 011 (800x600)

The reminders – can be everywhere –
even when you’re stuck in a traffic jam on the interstate. 2014-05-03 010 (647x800)

The D-trash…
New pump site
New Dexcom site
New vial of insulin
(and a new t-shirt!)
All in a Dexcom box!2014-05-14-002

Message on the Ping Meter – this is why I got a new pump this year.
This message is on the new one. Guess I’ll give them a call.
Bolus settings are fine.2014-05-11-010

 Just arrived this month – 3 months of pump stuff.
It’s interesting that the insets are good for longer than the reservoirs.2014-05-05-008

I haven’t eaten a Krispy Kreme in a gajillion years until…
I ate one – I used one for a low –
I froze the rest for a rainy day. Hmmm, it’s pouring this morning. Yay!2014-05-03-021

Love it when I overdo a low!2014-05-03-023

 No carbs and they make me smile!2014-05-05-001

Posted in Uncategorized | 7 Comments

D-Blog Week – Friday (Read the d-blogs!)

dblogweek2014

Click for the Diabetes Life Hacks – Friday 5/16 Link List.
Share the (non-medical) tips and tricks that help you in the day-to-day management of diabetes.  Tell us everything from clothing modifications, serving size/carb counting tricks to the tried and true Dexcom-in-a-glass trick or the “secret” to turning on a Medtronic pump’s backlight when not on the home-screen (scroll to the bottom of this post). Please remember to give non-medical advice only! (Thank you Rachel of Probably Rachel and Kelley of Below Seven for this topic suggestion.)

 

My trick – magic – whatever…

Read the d-blogs.

You will learn more than any endo, doctor, pcp, cde can ever teach you.

Really!

And the best part? Mostly, usually – d-people do not tell you what you need to do. They will tell you what they’ve done. They stress that it’s not medical advice. They are quick to advise that you need to call your medical provider when they feel you are in deep doo-doos.

Having a terrible (Alexander) day??? – post it on FB or your blog or Twitter (I still haven’t mastered tweeting…). Your d-friends will be there in minutes to console you. And sometimes, that is all you need, an understanding friend.

So – at 6pm on a Friday of the 5th Diabetes Blog Week, that’s my trick.

Go read some d-blogs!

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D-Blog Week – Thursday

dblogweek2014Click for the Mantras and More – Thursday 5/15 Link List.
Yesterday we opened up about how diabetes can bring us down. Today let’s share what gets us through a hard day.  Or more specifically, a hard diabetes day.  Is there something positive you tell yourself?  Are there mantras that you fall back on to get you through?  Is there something specific you do when your mood needs a boost?  Maybe we’ve done that and we can help others do it too? (Thanks to Meri of Our Diabetic Life for suggesting this topic.)

The positives?:
I had 55 years of not having diabetes…
D-Blog friends help keep me sane…
D-FB friends help keep me sane…
Spring weather helps keep me sane…
Reading short posts during D-Blog Week helps keep me sane…

Like the rest of you, I know I can do this; it’s just that sometimes, I get tired of doing this.

I’m reminded of the parents who sometimes step up to give their d-kids & teens a d-break. The parent does the testing/the counting/the mathwork/the dosing for a day or so, just so their son or daughter can have a very small break from the minutiae of having to stay alive every single day. It’s a nice thing to do.

I know from reading about it that D-Camp is for some kids – the highlight of their year, where they are just part of the crowd and not – different.

Christel just might be providing us with our own Adult D-Camp!
Read about it at theperfectd.

The Diabetes UnConference

 

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D-Blog Week – Wednesday

This is ridiculous! It’s almost 6pm on Tuesday night. I want to read more of the poetry (what a great topic – and boy do we have a whole lot of talented d-bloggers!), but until just now, I wasn’t even sure what tomorrow’s topic is and needless to say, haven’t written a damn word.

And I have to eat dinner at some point. Thankfully, I don’t have to fix it as my resident poet (my very own Type 3) does the cooking around here.

Click for the What Brings Me Down – Wednesday 5/14 Link List.
May is Mental Health Month so now seems like a great time to explore the emotional side of living with, or caring for someone with, diabetes. What things can make dealing with diabetes an emotional issue for you and / or your loved one, and how do you cope? (Thanks go out to Scott of Strangely Diabetic for coordinating this topic.)

I’ve met Scott. He’s really, really nice. He has the most engaging smile. He almost makes me wish we still lived in KC – almost…

I will totally give some credit to my PCP for alerting me to keeping an eye on my own mood(s) after the d diagnosis. I had a bunch of cr*p going on when I was diagnosed and my life already pretty much was kinda sucky. And then, the d-thing arrived. Not fun.

I have bad days, just like everyone else. But I recognize that “having a bad day” is nothing compared to those who deal with depression. But I totally appreciate and respect that the depression word/subject/idea is brought up here in the DOC. You never know who is going to get/find help, just because they recognized themselves in someone’s post.

So how do I cope? Sometimes, I don’t. I go bananas. I cry hysterically. I blame anyone who’s within five feet of me (yep, guess who that would be?).

Other times, I’m a little more controlled and I read, I compute, I watch dumb TV (house hunters saves me because some of them are so stupid they make me feel brilliant) and now that it’s almost summer, I’ll go work in the yard. (Stupid weeds!)

And then there are the d-bloggers and d-fbers. Without them, I’d be so scared. And I love that we all share more than just d-stuff. Flowers – Pets! – Recipes (yes, even the vegan ones) – Children’s Photos – Grandchildren’s Photos – Vacation Photos – you get the idea.

I guess I have to say, living in this DOC neighborhood of ours
makes living with diabetes
somewhat easier to cope with each and every day.

And – a final thought. If you’re reading this and you got here through Karen’s D-Blog Week list, take a few minutes to click on a blog there that you’ve never read and then, gasp, leave a comment. Sometimes, after taking the time to start a d-blog and move into the DOC neighborhood, it’s hard to feel like you’re getting to know anyone. We can all give one person a smile just by saying hello and saying something nice. You can skip commenting here – I’m fine today.

 

 

 

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D-Blog Week – Tuesday

dblogweek2014Click for the Poetry Tuesday – Tuesday 5/13 Link List.
This year, Diabetes Blog Week and TuDiabetes are teaming up to bring out the poet in you! Write a poem, rhyme, ballad, haiku, or any other form of poetry about diabetes. After you’ve posted it on your blog, share it on the No Sugar Added® Poetry page on TuDiabetes, and read what others have shared there as well!

I don’t write poetry. I love reading poetry. I hated memorizing poetry.

So, I asked my husband to write a poem.

And, he did.

And, here it is. And yes, I know that I’m a very fortunate woman.

Tuesday‘s Poem

It’s truly a curse
But some have it worse
She is a type one Big D
I’m only a three
We pray for a cure
However obscure
One thing is for sure
Our love will endure
She is my wife
And my life.

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D Blog Week – Monday

dblogweek2014

Click for the Change the World – Monday 5/12 Link List.
Let’s kick off Diabetes Blog Week by talking about the diabetes causes and issues that really get us fired up. Are you passionate about 504 plans and school safety? Do diabetes misconceptions irk you? Do you fight for CGM coverage for Medicare patients, SDP funding, or test strip accuracy? Do you work hard at creating diabetes connections and bringing support? Whether or not you “formally” advocate for any cause, share the issues that are important to you. (Thanks go out to Kim of Texting my Pancreas for inspiring this topic.)

So – I’m not going to change the world but I will soon be one of those d-people writing letters to promote CGM coverage for Medicare because, guess what? It’s almost that time of life for me. (Really? When did that happen? Is that why they no longer “card” me at the liquor store?)

When I was diagnosed and when that diagnosis indicated Type 1 LADA, I knew I wanted a pump. At that time, insurance said that you had to be on MDI for at least two years before you could even hope to get a pump.

Well – with thanks to those d-people who wrote and advocated and blogged and begged, I got the pump without a two year wait.

Same with the CGM, Kerri and others had to fight to get a CGM. Now, because of her and all of the others who worked hard for all of us, I have a CGM. And it’s probably saved us a couple of ER trips, easily.

Driving? I have pulled off I93, tested, and did the “drink the juice” before continuing.

Sleeping? 49 on Dexcom means juice and maybe a peanut butter cracker at 2am.

Working? Gardening? Cooking? All of them!

So now – I’m approaching Medicare and know that CGMs are not provided. I’ve known it for awhile. It sucks.

When I spoke with my PCP about this Medicare D-issue, along with others – like enough test strips, she quietly said, “Well, it costs them less, if you die.”

Mike H wrote about it over at DiabetesMine.

And Sue wrote about it at Test, Guess & Go.

Advocate? Sure, count me in!

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Road Trip!

Next week we’ll be driving all the way to Nags Head, North Carolina.

Beach, sun, sand and I’ll bet there are things blooming! No jackets! No fleece!

We’re not going to push ourselves. We used to do that with two kids and while we survived it – we’re not doing 12+ hours in the car, in one day, now that it’s just the two of us.

Biggest issue – thing(s) I have to remember – extra baggage, is of course the d-supplies.

2014-04-22 002Last year I bought – on sale! (no surprise…) – a small back pack just for lugging the d-stuff around. It’s great because, I tend not to lose it (well, not yet) or forget it (again, not yet) due to its bright, somewhat annoying colors.

It was especially handy on a flight where I’d packed it in my carry-on bag – and – they were taking the carry-on bags when we got on the plane. I just removed my pink d-bag and let the bigger bag go to the luggage place or whatever/wherever in the plane.

I put everything in it – all d-supplies – all baggies w/ juice boxes – all d-everything.

It’s great when we’re “on the road,” also. Stays in the back seat (no kids, remember?), is the first thing taken into the hotel/motel – friend’s house. I’m not searching through make up, or toothpaste looking for a pump inset/cartridge. It’s proved to be a great purchase and worth every bit of the 5 or so dollars I spent on it.

Onward! To the NJ Turnpike – the road we all love to hate.

 

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