2016 Diabetes Blog Week – Wednesday

Click for the Language and Diabetes – Wednesday 5/18 Link List.
There is an old saying that states “Sticks and stones may break my bones, but words will never hurt me”. I’m willing to bet we’ve all disagreed with this at some point, and especially when it comes to diabetes. Many advocate for the importance of using non-stigmatizing, inclusive and non-judgmental language when speaking about or to people with diabetes. For some, they don’t care, others care passionately. Where do you stand when it comes to “person with diabetes” versus “diabetic”, or “checking” blood sugar versus “testing”, or any of the tons of other examples? Let’s explore the power of words, but please remember to keep things respectful.

I used to worry about the words. I’m old enough now that most of the words don’t bother me.

So for today, I’m going to go spend some time reading and commenting!

Oh wait! Medicare & CGMS
Those two words (ok – those five words) are on my mind every single day.
Have you contacted your state government officials to let them know that it’s VERY important that Medicare approve CGMS’s?
Please take the time to do that. Please?

It’s easy!

Follow this link. And thank you!

http://jdrf.org/take-action/advocacy/cgm-medicare-coverage/

And – as much as I love comments – given a choice, please follow the link and contact your state’s government officials and SKIP leaving me a comment.

Thanks, again!

Colleen

 

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2016 Diabetes Blog Week – Tuesday

2016-BlogWeekClick for the Link List:
The Other Half of Diabetes – Tuesday 5/17
We think a lot about the physical component of diabetes, but the mental component is just as significant. How does diabetes affect you or your loved one mentally or emotionally? How have you learned to deal with the mental aspect of the condition? Any tips, positive phrases, mantras, or ideas to share on getting out of a diabetes funk?

The mental part? Like with any chronic disease, there are good and bad and even some “blah, who cares?” days. And some days I truly begin to doubt myself and my ability to treat my own diabetes. And other days I think I’m the queen of d-care.

The rest of the days? I think I’m probably nuts.

The love of my life – my husband – is my rock, and God only knows how he puts up with my bitching and moaning some days. (And Karen, he just brought a slice of lime for my drink!) After collapsing and falling sound asleep some nights, he’s the one who will stay up and watch the Dexcom numbers if there’s an issue. I hate, hate, hate that he has to do that. I know that he doesn’t have to do that. But he does. And it makes me sad and it makes me angry. But mostly, it makes me happy. I won’t mention the guilt…

No tips – well, one tip. Become active in the DOC. Connect on FB, create your own blog, do the Twitter thing (I still don’t know how…). Join a support group if you have one. When I first started pumping I attended a great group. I drove over an hour to meet them. It was worth it and I’m so grateful that I had that opportunity. They don’t meet any longer. Wish they did. It was sponsored by Animas and I loved being able to meet other d-people and pumper people.

Just do something so you won’t feel so alone.

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2016 Blog Week – Monday

2016-BlogWeekWow, it’s still here! My blog – the one I used to be so faithful about writing posts!

Thanks to Karen and the 7th Annual Diabetes Blog Week, I’m back here trying to blog, again.

Well – – –

Today’s topic: Why Am I Here?
Let’s kick off the week by talking about why we are here, in the diabetes blog space. What is the most important diabetes awareness message to you? Why is that message important for you, and what are you trying to accomplish by sharing it on your blog?

That’s too funny!
Simple answer – because Karen encouraged all of us to participate in this 7th Annual Blog Week. Just like she’s done for the past six years. She’s very encouraging!
Short answer – because I probably would be a very confused and angry and sick and lonely person with diabetes if I hadn’t found the d-blogs, and the d-bloggers, and the gazillion people who make up the DOC, Diabetes Online Community.

The most important message for me. I am not alone.

Which also means – You are not alone.

I need to share my not alone thoughts more often, so that some other d-newby, especially those of us with LADA who are being diagnosed when we are long past the juvenile ages, will find me and know that they’re not the only one.

A whole week of blogging? This will be good for me. This will get me back in the swing of blogging on a regular basis.

Um – let’s hope I do better at this than the treadmill.

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Still blogging after all these years…

I’m going to do the bullet thing because…

I can!

  • We each got a Fitbit for Christmas. When you’re older and there’s no you know who, you go to the store together and buy the presents. (BB&B Coupons!) He is way ahead of me when it comes to the steps. I’m even on the treadmill (yes, again) (I dusted it off) and he’s still ahead.
  • Sigh…
  • We still do a couple of surprise gifts for each other but don’t go overboard. (We do not need more STUFF!)
  • I just heat sealed/bagged 4 dozen plus cookies. I don’t want them to go bad and I’m sure they’ll be a yummy treat in the greyness of February.

2015-12-29 10

  • Shoveling snow is good for my blood sugar.
  • Eating the most incredible chocolate chip cookie – which I’ve decided might be around 35/40 carbs – destroyed the joy of shoveling. But it was worth it.
  • Sigh…
  • I’m looking forward to a quiet New Year’s Dinner with friends. It’s an early dinner and in all likelihood – we’ll be asleep long before midnight.
  • I like using Dexcom G5.
  • I like using the iPhone as my receiver because – if I misplace it, I just have to call it.
  • I silence the iPhone at night and use the Dexcom receiver to beep and do the “shake, rattle, and roll” thing.
  • My new car does the Bluetooth thing with my phone – WHY can’t it show my BG on the car screen? (That would be nifty!)
  • If my parents were still alive, today would be their 67th wedding anniversary. They were pretty awesome parents!

My grandmothers and my parents.

My grandmother on the right probably was a Type 1 Lada, before there was such a thing. She was diagnosed in her 20’s with “adult” diabetes.

DesmondWedding

 

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FWGMC

Cookie_monsterFWGMC
Friends who give me cookies! I love those friends. It’s taken awhile to “educate” a few of them –

And even better, the friend who made and brought me an apple pie this week. It’s going to be delicious. This woman is known for her pies and her crusts.

I haven’t done much Christmas cookie baking since I was diagnosed – 10 years ago. I like baking. I like eating cookies. I’ve gotten better at the SWAG thing (scientific wild ass guessing) when it comes to counting/guessing carbs.

So this year – I decided, I will BAKE! (Do you watch the British Baking Show that was on right before Downton? It’s so much fun to watch!)

But – friends have given us so much and so – I’m not going to BAKE. Time enough in January when the snow starts (if it ever starts…).

Hope your Christmas or other holiday celebrations are merry and bright.

Thanks for being my friends. Really.

Hugs!

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Dexcom Beeps!

I don’t want to write about this.

I can’t believe I’m writing about this.

Last week – there was a lunch – at work.

I’m the one who orders and picks up the monthly lunches. It’s fun and yummy! And every now and then, it’s a birthday lunch.

It was a Birthday Lunch.  (There was Boston Cream Pie.)

Dexcom went nuts.

And one person made comments about Dexcom’s beepings.

The beeps got annoying and I switched it to vibrate.

The vibrates got annoying and the person said, “What is that?”

I explained that my blood sugar was high and the person said, “Well, yes – YOU ATE CAKE!”

And – I lost it.

I stayed fairly calm. I like my job and even more, I like my health insurance.  And this person – is my boss. Well, sh*t.

BUT – the person needed to know – he was wrong. So I did the old “search thing” for Diabetes Etiquette – and found it/them.

And – I printed the following and put it in this person’s mailbox.

Thank you Dr. Polonsky!

1 – DON’T offer unsolicited advice about my eating or other aspects of diabetes. You may mean well, but giving advice about someone’s personal habits, especially when it is not requested, isn’t very nice. Besides, many of the popularly held beliefs about diabetes (“you should just stop eating sugar”) are out of date or just plain wrong.

2 – DO realize and appreciate that diabetes is hard work. Diabetes management is a full-time job that I didn’t apply for, didn’t want, and can’t quit. It involves thinking about what, when, and how much I eat, while also factoring in exercise, medication, stress, blood sugar monitoring, and so much more – each and every day.

And this morning – in my mailbox.

“I sincerely apologize.”

You know, having Diabetes sucks. Having DOC friends is awesome. Having the GUTS to stick up for myself? Couldn’t have done it without ya!

Thanks DOC!

 

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I Did It

2015-12-17 01I did it. I ordered the Dexcom G5. I have it.

(The ordering process is a whole ‘nother blog post…)

I just did the fake “Yes, I inserted a new sensor.” this morning so it’s been one whole week!

I like it. I really like it.

I leave the receiver at home while I’m at work. I only have to find my phone and that’s not so bad since I can call it if I lose it. And hope that I haven’t shut off the ringer.

I’m still figuring out some stuff. I still don’t have a clue how Diasend is going to work. Or even if it works.

Clarity works – automatically from the phone so that helps.

Phone staying charged hasn’t been too bad. I bought new, longer charging cords for the bedroom for each of us so that we’re not having to unplug it just to look at it.

M’s had more no info issue than I have. He’s on as a follower/sharer. I’m not sure what the problem is (or what I did wrong…) but it’s been better the last day or two so maybe it’s not a problem. I wish.

I’m using the receiver at night and putting the phone on vibrate. The receiver is in a glass dish on my nightstand. I almost always hear it so, it works.

I had a couple of questions and ended up speaking with a CDE at Dexcom. She was very helpful – has Type 1 – and wears a pump and Dexcom.

I’ve said this before – I may have written it before but… If I could only have one D-machine, I’d choose Dexcom.

Keep writing those letters to your representatives and senators. We need Dexcom and other CGMS to be approved (and paid for) by Medicare. And it’s not just those of us of a certain age that need your help with this. Medicare approval helps all of us when it comes to having and using a CGMS that’s provided by insurance.

Speaking of which, our insurance changes January 1. I have NO clue what’s going to be covered/not covered, etc…

Wishing everyone a Merry Christmas or a Happy Holiday or a Nice Day. Whatever make you smile and feel good!

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Learning from the D-Blogs

I have always enjoyed learning something new. I’d prefer that my new knowledge NOT be related to Diabetes but – you take what you can get.

I keep juice boxes in my car most of the year. And I have to be honest, sucking down a box of hot juice in August is not fun. But, even less fun is trying to suck down a partially frozen box of juice in February. Only happened once because – I enjoy learning.

But – I didn’t know that glucose tablets don’t freeze. And I doubt that heat kills them so – My jumbo jar of Wal-Mart glucose tablets will now stay in the car – hot and or cold.

Where did I learn this? That Canadian D-gal – Scully and her Hacks!

Inserting Dexcom by myself in my arm? There are several d-people who have recorded a bunch of “how to’s.”

The one that helped me was Kim’s – a couple of years ago. I was quite annoying with my Yay! I did its! on Facebook that day. I still ask my husband for help most of the time – cuz it’s easier. But at least I know that I can do it, if I have to do it.

And – I don’t use OmniPod but – the first time I watched Caleb do his – by himself (with a little help/advice) – I was just as thrilled as if I’d been his mom. He was so proud and it gave me the courage to keep on working on this d-stuff, even when it’s not easy. He’s older now – and even cuter!

So – d-bloggers need to keep on teaching. You never know who you’re giving some much needed courage to keep on keeping on.

 

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Hello, It’s Me…

The song was popular in the early 70’s – 1972, to be exact.

Here’s the song – https://youtu.be/lLeCB7Kn-VE
I put it at the bottom of this post.

Here are the lyrics (for you younger d-people who think the 70’s are the old days – please remember that the Beatles and the Rolling Stones were the 60’s) – (And some of us were around for those…)
https://play.google.com/music/preview/Tkmzw3nu2aqyfawffhhnsgbby5i?

I very often think of the d-bloggers that I got to know when I was first diagnosed. OMG – I have Diabetes? Me? I was scared. I was angry. I was petrified. And there they all were – right there on my computer screen. It was very nice.

I have this terrible habit of speaking before I think. Commenting on blogs? Well, I’ve grown wiser with age and kept my mouth shut for a long time. I was a “lurker.” There was even a day for “unlurking.”  I really enjoy having all of these d-friends and know that I’m lucky to have found the DOC – Diabetes Online Community.

Back in the beginning, I spent a whole lot of time Googling terms I would read on the d-blogs.

What’s a basal? (Hint – not the plant you grow in your veggie garden.)

What’s a bolus? (Another hint – frequently seen as “I bloused 2 units for the cupcake,” because spell checks just don’t get bolusing – )

What’s MDI? (Multiple Daily Injections) It’s not an advanced degree – but it probably should be!

And now? Well – I’m pumping with an Animas Ping. I’m CGM’g (Continuous Glucose Monitor) with a Dexcom. And I’m writing letters to Senators and Representatives for their help in making CGMs available through Medicare. And – my preference is approval for Types 1 & 2.

So – since I’ve dusted this ole blog off (Thanks, Reyna!), I hope to find some new friends in addition to boring my old friends.

Oh – one more thing! I can spell Endocrinologist! Yay, me!

AND – we haven’t had to shovel any snow yet!

 

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I miss blogging

I love all my DOC friends on Facebook. But..

I really miss blogging.

So, I’m going to try again.

Right – in December – I work at a church – I’m busy.

I’m still going to try again.

And – I haven’t had to shovel any snow, yet…

Working on writing up my info for those who are trying hard to get Medicare approval for CGMs. Then – I could retire!

And – after hitting publish – saw that this is #599 – so I guess #600 has to be a good one!

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