Old blog, new insulin pump…

If it wasn’t for D-Blog week (Karen, is it happening this year?), this blog would be blank. Really – it’s been a year? Sigh…

But…

There’s a new pump! The t:slim X2. (I had to investigate the correct way to write it…)

There’s new insurance! Egads, I’m on Medicare.

I had my first C-Peptide test. I passed (or maybe we fail…??)! I still have Type 1 Diabetes. What a surprise!

And, I officially retired on 12/31. You would think with all that extra time that I’d be on this computer just blogging away. Didn’t happen.

Until today, it hasn’t been a really smooth transition.

Tandem is/was delightful but the young man handling my account/order had a tough time figuring out just which company I was going to order the pump and supplies through. By the third company, my endo’s office was calling and asking just what the heck was going on – as they were being contacted by each (3 of them) medical supply company during a two week period.

Then – the C-Peptide and fasting glucose was needed by the medical supply company for the approval. Again, the endo was annoyed (I love my endo) (thinks the test is a waste of time and money for me/my insurance) but did the order.

Then – I let the Tandem person know that I hadn’t ever seen or touched a t:slim so she said she’d have someone contact me – didn’t happen.

And Friday night I was called to say it was approved and yesterday I got a FedEx notice saying it’s being delivered on Thursday.

So… I shot off an unhappy email early this am and now – everything is fixed and sounds like it’s going to be a good experience. The trainer sounds delightful so I think this is going to be fun. Well – it’s still diabetes but we can have fun, right? Maybe I’ll bake some cupcakes for our training session.

Meanwhile – did some changes to this page and holy gee I have to figure out some stuff. I’ll get there. Stay tuned for more of me & medicare & tandem & dexcom.

 

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Day 4 – 2017 D-Blog Week

Click here for the
Throwback Thursday: What Brings Me Down – Thursday 5/18 Link List
Today let’s revisit a prompt from 2014 – May is Mental Health Month so now seems like a great time to explore the emotional side of living with, or caring for someone with, diabetes. What things can make dealing with diabetes an emotional issue for you and / or your loved one, and how do you cope? (Thanks again to Scott for this 2014 topic.)

And being older than most/all/some? of you – this is what I thought of when I read today’s blog suggestion…

I’m still surprised when I dissolve into a puddle of sadness because I have diabetes.

The cost, the sleepless nights, the cost, the stupid people, the cost, the lost time, etc…

The fear… That’s not fun either.

Coping? Friends who get it, especially online d-friends who are so very quick to offer hugs and sympathy and advice and applause whenever it’s needed. A husband who counts carbs like a champ, leaves juice on the nightstand when he sees Dexcom trending down, puts up with my moods (and there are many) makes daily coping easier, too.

“I Can Do This” with a little help from my friends.

Day 3 – 2017 D-Blog Week

Click here for The Blame Game – Wednesday 5/17 Link List
Having diabetes often makes a visit to the doctor a dreaded experience, as there is invariably bad news of one kind or another.  And sometimes the way the doctor talks to you can leave you feeling like you’re at fault.  Or maybe you have a fantastic healthcare team, but have experienced blame and judgement from someone else in your life – friend, loved one, complete stranger.  Think about a particularly bad instance, how that person talked to you, the words they used and the conversation you had.  Now, the game part.  Let’s turn this around.  If you could turn that person into a puppet, what would you have them say that would leave you feeling empowered and good about yourself?   Let’s help teach people how to support us, rather than blame us!  (Thank you, Brian, for inspiring this topic.)

I’m reprinting an old post –
(and FYI – The Blame Game has me singing The Name Game all morning – ack!)
(and just the thought of turning that person into a puppet makes me chuckle…)
(Oh, and I have a new, very kind and understanding and caring, boss.)

Dexcom Beeps!

I don’t want to write about this.

I can’t believe I’m writing about this.

Last week – there was a lunch – at work.

I’m the one who orders and picks up the monthly lunches. It’s fun and yummy! And every now and then, it’s a birthday lunch.

It was a Birthday Lunch.  (There was Boston Cream Pie.)

Dexcom went nuts.

And one person made comments about Dexcom’s beepings.

The beeps got annoying and I switched it to vibrate.

The vibrates got annoying and the person said, “What is that?”

I explained that my blood sugar was high and the person said, “Well, yes – YOU ATE CAKE!”

And – I lost it.

I stayed fairly calm. I like my job and even more, I like my health insurance.  And this person – is my boss. Well, sh*t.

BUT – the person needed to know – he was wrong. So I did the old “search thing” for Diabetes Etiquette – and found it/them.

And – I printed the following and put it in this person’s mailbox.

(https://www.diabeteshealth.com/etiquette-for-people-without-diabetes/)

Thank you Dr. Polonsky!

1 – DON’T offer unsolicited advice about my eating or other aspects of diabetes. You may mean well, but giving advice about someone’s personal habits, especially when it is not requested, isn’t very nice. Besides, many of the popularly held beliefs about diabetes (“you should just stop eating sugar”) are out of date or just plain wrong.

2 – DO realize and appreciate that diabetes is hard work. Diabetes management is a full-time job that I didn’t apply for, didn’t want, and can’t quit. It involves thinking about what, when, and how much I eat, while also factoring in exercise, medication, stress, blood sugar monitoring, and so much more – each and every day.

And this morning – in my mailbox.

“I sincerely apologize.”

You know, having Diabetes sucks. Having DOC friends is awesome. Having the GUTS to stick up for myself? Couldn’t have done it without ya!

Thanks DOC!

Day 2 – D-Blog Week

Click here for the The Cost of a Chronic Illness – Tuesday 5/16 Link List
Insulin and other diabetes medications and supplies can be costly.  Here in the US, insurance status and age (as in Medicare eligibility) can impact both the cost and coverage.  So today, let’s discuss how cost impacts our diabetes care.  Do you have advice to share?  For those outside the US, is cost a concern?  Are there other factors such as accessibility or education that cause barriers to your diabetes care?  (This topic was inspired by suggestions from Rick and Jen.)

I’m getting ready to transition to Medicare – and that scares the sh*t out of me.

Back to Medicare – I’m petrified. We’ve scheduled an appointment with a local woman (she sounds really young but was well recommended by a local insurance agent) to analyze and look at what we can do as far as plans – advantage, supplement, prescription. She said, “You’ll need to have a list of any prescriptions you use.” Poor girl – she’s going to be awed. (Or she might just run away from us!)

I NEVER thought I’d be working at my age. We both worked hard to make it possible to retire and enjoy our retirement. Diabetes brought that to a screeching halt. For new d-friends, I was dx’d at age 55. I’ve said I’d give up my pump before my Dexcom if given a choice. I know they’re approved now but – it looks like there will be some bumps before it, Dexcom, is totally available.

And… it truly and honestly bothers me immensely that there are people who are not able to afford the d-medications that they need to stay alive. Give me a break. NO ONE should be denied medications needed to STAY alive.

PS – I truly LOVE comments and I know everyone else does, too. But… I’m going to do comment catching up after D-Blog week. If I do comments now they’ll all say, “Nice!” or “Thank you for posting this.” I’m really looking forward to meeting new bloggers and catching up with some of “been around for some time” bloggers.

Day 1 – 2017 D-Blog Week

Really? The 8th Year?! How amazing!

Today’s post suggestion: There are two. I chose “good things diabetes has brought into my life.”

  1. All the d people who have become friends through blogging and facebooking
  2. The people I’ve met here in my town because I don’t keep my Diabetes a secret. Two great examples…
    The elderly woman who showed up in my church office holding her meter and lancet who said, “They told me you would help me.” “They” are some women in the church who know I have D and so when the woman was first diagnosed with Type 2 and at a loss as to how to test, they sent her to me.
    The second is a family whose young daughter with Type 1 who uses a pump. They were hesitant to send her to a summer program at the church until another parent said, “Oh, the parish secretary wears a pump! She’ll be there!”
  3. I know how to count carbs. Heck, I know what carbs are.
  4. I am soooooooooooooooo good at shutting up people who ask, “Can you eat that?” I used to teach. I can still teach. And I do!
  5. The D-Parents. You are all amazing!

Life goes on. We all hope and pray for this dreadful disease to be cured. I’m grateful that I found friends who have helped me for the past 12 years.

And that’s a good thing.

Finding the d-bloggers

Way back when… Not really but… When following blogs on a daily basis…

I saved each blog – and there were LOTS of ’em – as a favorite in/on? my browser. And each morning I would click on EACH one to see if that blogger had posted something new in the last day or so.

It was tedious.

Then, it was Amy over at Diabetes Mine who wrote about Google Reader (don’t look for it, it’s gone) and wowee, zowee, it was a miracle. I set up my Reader page and it would do the hard work and let me know when there was a new post on one of my favorite blogs!

And life was much simpler. And I got to read a bunch of d-blogs. And made new friends!

Yay!

Then it (Google Reader) was gone.

I’m not sure how I found Feedly – but I did a couple of years ago. Haven’t used it in awhile but decided it was time to get back to reading and writing blogs. I’ve set it up – again.

Using Karen’s list of participating bloggers for the 8th Annual D-Blog Week!, I’m finding some old friends and some new friends. Have added those to my new Feedly list and am hoping I can keep up with the reading of the blogs.

Especially during D-Blog Week!