Day 4 – 2017 D-Blog Week

Click here for the
Throwback Thursday: What Brings Me Down – Thursday 5/18 Link List
Today let’s revisit a prompt from 2014 – May is Mental Health Month so now seems like a great time to explore the emotional side of living with, or caring for someone with, diabetes. What things can make dealing with diabetes an emotional issue for you and / or your loved one, and how do you cope? (Thanks again to Scott for this 2014 topic.)

And being older than most/all/some? of you – this is what I thought of when I read today’s blog suggestion…

I’m still surprised when I dissolve into a puddle of sadness because I have diabetes.

The cost, the sleepless nights, the cost, the stupid people, the cost, the lost time, etc…

The fear… That’s not fun either.

Coping? Friends who get it, especially online d-friends who are so very quick to offer hugs and sympathy and advice and applause whenever it’s needed. A husband who counts carbs like a champ, leaves juice on the nightstand when he sees Dexcom trending down, puts up with my moods (and there are many) makes daily coping easier, too.

“I Can Do This” with a little help from my friends.

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Day 3 – 2017 D-Blog Week

Click here for The Blame Game – Wednesday 5/17 Link List
Having diabetes often makes a visit to the doctor a dreaded experience, as there is invariably bad news of one kind or another.  And sometimes the way the doctor talks to you can leave you feeling like you’re at fault.  Or maybe you have a fantastic healthcare team, but have experienced blame and judgement from someone else in your life – friend, loved one, complete stranger.  Think about a particularly bad instance, how that person talked to you, the words they used and the conversation you had.  Now, the game part.  Let’s turn this around.  If you could turn that person into a puppet, what would you have them say that would leave you feeling empowered and good about yourself?   Let’s help teach people how to support us, rather than blame us!  (Thank you, Brian, for inspiring this topic.)

I’m reprinting an old post –
(and FYI – The Blame Game has me singing The Name Game all morning – ack!)
(and just the thought of turning that person into a puppet makes me chuckle…)
(Oh, and I have a new, very kind and understanding and caring, boss.)

Dexcom Beeps!

I don’t want to write about this.

I can’t believe I’m writing about this.

Last week – there was a lunch – at work.

I’m the one who orders and picks up the monthly lunches. It’s fun and yummy! And every now and then, it’s a birthday lunch.

It was a Birthday Lunch.  (There was Boston Cream Pie.)

Dexcom went nuts.

And one person made comments about Dexcom’s beepings.

The beeps got annoying and I switched it to vibrate.

The vibrates got annoying and the person said, “What is that?”

I explained that my blood sugar was high and the person said, “Well, yes – YOU ATE CAKE!”

And – I lost it.

I stayed fairly calm. I like my job and even more, I like my health insurance.  And this person – is my boss. Well, sh*t.

BUT – the person needed to know – he was wrong. So I did the old “search thing” for Diabetes Etiquette – and found it/them.

And – I printed the following and put it in this person’s mailbox.

(https://www.diabeteshealth.com/etiquette-for-people-without-diabetes/)

Thank you Dr. Polonsky!

1 – DON’T offer unsolicited advice about my eating or other aspects of diabetes. You may mean well, but giving advice about someone’s personal habits, especially when it is not requested, isn’t very nice. Besides, many of the popularly held beliefs about diabetes (“you should just stop eating sugar”) are out of date or just plain wrong.

2 – DO realize and appreciate that diabetes is hard work. Diabetes management is a full-time job that I didn’t apply for, didn’t want, and can’t quit. It involves thinking about what, when, and how much I eat, while also factoring in exercise, medication, stress, blood sugar monitoring, and so much more – each and every day.

And this morning – in my mailbox.

“I sincerely apologize.”

You know, having Diabetes sucks. Having DOC friends is awesome. Having the GUTS to stick up for myself? Couldn’t have done it without ya!

Thanks DOC!

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Day 2 – D-Blog Week

Click here for the The Cost of a Chronic Illness – Tuesday 5/16 Link List
Insulin and other diabetes medications and supplies can be costly.  Here in the US, insurance status and age (as in Medicare eligibility) can impact both the cost and coverage.  So today, let’s discuss how cost impacts our diabetes care.  Do you have advice to share?  For those outside the US, is cost a concern?  Are there other factors such as accessibility or education that cause barriers to your diabetes care?  (This topic was inspired by suggestions from Rick and Jen.)

I’m getting ready to transition to Medicare – and that scares the sh*t out of me.

Back to Medicare – I’m petrified. We’ve scheduled an appointment with a local woman (she sounds really young but was well recommended by a local insurance agent) to analyze and look at what we can do as far as plans – advantage, supplement, prescription. She said, “You’ll need to have a list of any prescriptions you use.” Poor girl – she’s going to be awed. (Or she might just run away from us!)

I NEVER thought I’d be working at my age. We both worked hard to make it possible to retire and enjoy our retirement. Diabetes brought that to a screeching halt. For new d-friends, I was dx’d at age 55. I’ve said I’d give up my pump before my Dexcom if given a choice. I know they’re approved now but – it looks like there will be some bumps before it, Dexcom, is totally available.

And… it truly and honestly bothers me immensely that there are people who are not able to afford the d-medications that they need to stay alive. Give me a break. NO ONE should be denied medications needed to STAY alive.

PS – I truly LOVE comments and I know everyone else does, too. But… I’m going to do comment catching up after D-Blog week. If I do comments now they’ll all say, “Nice!” or “Thank you for posting this.” I’m really looking forward to meeting new bloggers and catching up with some of “been around for some time” bloggers.

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Day 1 – 2017 D-Blog Week

Really? The 8th Year?! How amazing!

Today’s post suggestion: There are two. I chose “good things diabetes has brought into my life.”

  1. All the d people who have become friends through blogging and facebooking
  2. The people I’ve met here in my town because I don’t keep my Diabetes a secret. Two great examples…
    The elderly woman who showed up in my church office holding her meter and lancet who said, “They told me you would help me.” “They” are some women in the church who know I have D and so when the woman was first diagnosed with Type 2 and at a loss as to how to test, they sent her to me.
    The second is a family whose young daughter with Type 1 who uses a pump. They were hesitant to send her to a summer program at the church until another parent said, “Oh, the parish secretary wears a pump! She’ll be there!”
  3. I know how to count carbs. Heck, I know what carbs are.
  4. I am soooooooooooooooo good at shutting up people who ask, “Can you eat that?” I used to teach. I can still teach. And I do!
  5. The D-Parents. You are all amazing!

Life goes on. We all hope and pray for this dreadful disease to be cured. I’m grateful that I found friends who have helped me for the past 12 years.

And that’s a good thing.

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Finding the d-bloggers

Way back when… Not really but… When following blogs on a daily basis…

I saved each blog – and there were LOTS of ’em – as a favorite in/on? my browser. And each morning I would click on EACH one to see if that blogger had posted something new in the last day or so.

It was tedious.

Then, it was Amy over at Diabetes Mine who wrote about Google Reader (don’t look for it, it’s gone) and wowee, zowee, it was a miracle. I set up my Reader page and it would do the hard work and let me know when there was a new post on one of my favorite blogs!

And life was much simpler. And I got to read a bunch of d-blogs. And made new friends!

Yay!

Then it (Google Reader) was gone.

I’m not sure how I found Feedly – but I did a couple of years ago. Haven’t used it in awhile but decided it was time to get back to reading and writing blogs. I’ve set it up – again.

Using Karen’s list of participating bloggers for the 8th Annual D-Blog Week!, I’m finding some old friends and some new friends. Have added those to my new Feedly list and am hoping I can keep up with the reading of the blogs.

Especially during D-Blog Week!

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Dusting this off…

2017-blogweek

Karen posted that it’s almost time for Blog Week. I gasped.

Then I had to find my password to my blog – this one.

Then I had to remember how to post…

I can do this! Eight years of DBW? Wow!

See ya next week!

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Lucky me!

Had an endo appointment today.

I was sure the A1c was going to be the worst ever.

I was sure she’d look at me like I had two heads when she examined my Dexcom and Ping Pump graphs.

As I sat with her- looking at the graphs – the assistant came in with the magic piece of paper, handed it to my doctor who then laughed as she handed it to me.

I felt it was going to be my HIGHEST ever. It wasn’t. I don’t do numbers here but I’m fine. The number was better than usual. I guess I’m not killing myself with Diabetes.

We went over some strategies. We changed two basals. We changed an I-C ratio.

And – I got my flu shot. As an “over 65” person, I get the high test shot.

The Dexcom Clarity thing now goes to them automatically once I sign up. She asked me to use it regularly and just email her if I need some help.

I got in the car – heading north on the interstate and feeling so very lucky to have a physician who gives a rat’s ass about me. Called Moffett who made appropriate “Yippee” responses. The radio was on – The Four Tops-I Can’t Help Myself (Sugar Pie, Honey Bunch) (released in 1965) – and I giggled.

I’m not a perfect Diabetic – but with the help of d-friends, I can do this.

PS – Thanks Kim Hislop for meeting me for lunch. We’ll have to do that more regularly.2016-10-18

PPS – Charli – Yes, you may ask, “Who are the Four Tops?”

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Try to remember…

Here’s the big question. Do I even remember how to do this blog thing?

I’m going to make this one short and sweet. Well, no. I guess it won’t be sweet cuz then I’d have to take insulin and I don’t consider blogging as being Bolus Worthy.

Endo appointment this week. The office is just over an hour away and it should be a not so bad drive. (Fall in NH. People pay big bucks to ride around on buses and check out the “foliage.”) Nicest part? Kim Hislop is going to meet me for lunch before my appointment. I met Kim in Las Vegas at the first Diabetes UnConference. And last month my husband and I both did the JDRF walk with her team in Manchester, NH.

I’m trying to get back on the D-Wagon. Today I did my first Big Blue Test. Number plummeted and as usual I said to myself, “Self – why don’t you do this more often?”

Here’s hoping I get back on the stupid treadmill tomorrow morning before work!

Oh – here’s the photo I used on our Thank You notes that I sent to my JDRF donors!

jdrfwalkphoto

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2016 Diabetes Blog Week – Friday

2016-BlogWeekHurray – D-Blog Week is just five days this year!

Click for the Tips and Tricks – Friday 5/20 Link List.
Let’s round out the week by sharing our best diabetes tips and diabetes tricks. From how you organize supplies to how you manage gear on the go/vacation (beach, or skiing, or whatever). From how you keep track of prescription numbers to how you remember to get your orders refilled. How about any “unconventional” diabetes practices, or ways to make diabetes work for YOU (not necessarily how the doctors say to do it!). There’s always something we can learn from each other. (Remember though, please no medical advice or dangerous suggestions.)

2014-05-05-008Old photo over there on the left, but I still do the same thing. As soon as a new order comes in, I mark it with the expiration date(s), empty out my supply shelf and redo it with the new stuff in the back. And yes, I know the expiration dates are on the package but when I’m in the middle of an inset/cartridge/insulin change for my pump, I don’t want to be squinting at tiny little print.

 

 

 

2014-04-22 002
This one’s pretty cool, if I might say so myself. This is an el cheapo child’s back pack that I bought on sale. When we travel, I try to put all the d-stuff in this annoyingly pink back pack. When flying, it goes in the top of my carry-on so if I end up checking my bag, I can take it out and keep it with me.
BUT – when we went to Denver in April, I didn’t bring it (I thought our seat assignments were good enough – not…), and both flights were threatening to take our bags as the planes were crowded. My Virginia Gentleman husband with his Virginia accent and  silver hair spoke with the employees at the gates telling them that I had insulin that could not go in the baggage hold. Both times it was, “Oh my, you will both pre-board. Just come on up when we announce it.” Awesome!
AND – this works great for road trips with hotels and/or visiting friends. The pink bag is not left in the car when it’s too hot or too cold. I can always see it easily (it’s hard to miss!). I grab it to take along if we’re going away from our hotel or where we’re visiting. For a cheap find, it’s been great!

2016-05

And finally, I date the Dexcom sensor package each time. That way, if there’s a problem – I know when I inserted it and I have the lot number. And, I  get to see how long it lasted – I’m lucky when/if I get 10 days.

Have a great weekend!

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2016 Diabetes Blog Week – Thursday

2016-BlogWeekI’ve been reading and commenting and then – oh no, tomorrow’s Thursday. I have to do this again. M asked, “What’s tomorrow’s topic?” I answered, “I don’t have a clue.” So I went to Karen’s page and saw – Healthcare Experience. Oh sh**, I could be writing for hours.

Click for the The Healthcare Experience – Thursday 5/19 Link List.
Most people who live with a chronic illness end up with a lot of experience when it comes to dealing with healthcare. How would you improve or change your healthcare experience? What would you like to see happening during medical visits with your healthcare team? How about when dealing with your health insurance companies? What’s your Healthcare Wish List or Biggest Frustration? Today is the day to share it all!

How I learned to advocate for myself and my family in the healthcare zoo.

So – I wrote a very involved blog post about advocating for yourself.

It was boring. It’s deleted.

But – YOU are the consumer, the customer, the person who is paying your physician.
Make sure you ask your questions.
Make sure you get your answers.
Make sure your physician listens to you.
Make sure you are doing the very best you can for yourself.

Most importantly – don’t waste your time and your physician’s time.
Show up with your questions. Write down the answers.

Be the advocate for yourself.

And remember, none of us is perfect. Try the best you can and tomorrow, try it again.

One wish – that insurance companies would shut off the DAMN music when I’m on hold.

 

 

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